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Table 3 Physician and nurse CAESAR scores (EOL = end-of-life)

From: End of life in the critically ill patient: evaluation of experience of end of life by caregivers (EOLE study)

 

Physician

Mean score (± SD)

Nurse

Mean score (± SD)

Items for physicians and nurses

 1. Was an EOL palliative care approach clearly decided for the patient?

Please rate this experience: 1 Traumatic. 2 Painful. 3 Difficult. 4 Acceptable. 5 Comforting

4.25 (± 0.58)

N = 483

4.06 (± 0.65)

N = 464

 2. Was the decision to withhold or withdraw treatment clearly documented in the medical report?

Please rate this experience: 1 Traumatic. 2 Painful. 3 Difficult. 4 Acceptable. 5 Comforting

4.29 (± 0.57)

N = 423

4.05 (± 0.65)

N = 362

 3. Do you think the patient received excessive or futile care?

Please rate this experience: 1 Traumatic. 2 Painful. 3 Difficult. 4 Acceptable. 5 Comforting

4.17 (± 0.59)

N = 488

3.85 (± 0.62)

N = 467

 4. Was the patient able to communicate with you during his/her ICU stay?

Please rate this experience: 1 Traumatic. 2 Painful. 3 Difficult. 4 Acceptable. 5 Comforting

3.94 (± 0.58)

N = 484

4.26 (± 0.7)

N = 470

 5. Was the patient’s pain under control?

Please rate this experience: 1 Traumatic. 2 Painful. 3 Difficult. 4 Acceptable. 5 Comforting

4.23 (± 0.56)

N = 480

3.77 (± 0.77)

N = 466

 6. Was the patient able to breathe comfortably?

Please rate this experience: 1 Traumatic. 2 Painful. 3 Difficult. 4 Acceptable. 5 Comforting

3.94 (± 0.62)

N = 486

4.23 (± 0.66)

N = 473

 7. In your opinion. was the patient’s dignity respected?

Please rate this experience: 1 Traumatic. 2 Painful. 3 Difficult. 4 Acceptable. 5 Comforting

4.31 (± 0.57)

N = 489

4.18 (± 0.76)

N = 464

 8. Did the relatives pay regular visits to the patient?

Please rate this experience: 1 Traumatic. 2 Painful. 3 Difficult. 4 Acceptable. 5 Comforting

4.27 (± 0.65)

N = 490

4.21 (± 0.78)

N = 451

 9. Did the ICU team discuss the patient’s EOL wishes with the patient him/herself or with the relatives?

Please rate this experience: 1 Traumatic. 2 Painful. 3 Difficult. 4 Acceptable. 5 Comforting

4.22 (± 0.79)

N = 487

3.86 (± 0.83)

N = 449

 10. Were the relatives at the patient’s bedside at the time of death?

Please rate this experience: 1 Traumatic. 2 Painful. 3 Difficult. 4 Acceptable. 5 Comforting

4.09 (± 0.59)

N = 487

4.02 (± 0.91)

N = 468

 11. During the patient’s ICU stay. did the relatives receive support from a psychologist?

Please rate this experience: 1 Traumatic. 2 Painful. 3 Difficult. 4 Acceptable. 5 Comforting

4.19 (± 0.72)

N = 488

3.84 (± 0.72)

N = 475

 12. Are you satisfied with the patient’s overall quality of dying and death?

Please rate this experience: 1 Traumatic. 2 Painful. 3 Difficult. 4 Acceptable. 5 Comforting

3.75 (± 0.67)

N = 484

3.74 (± 0.78)

N = 441

 13. If the patient had been your relative. would you have been satisfied with his/her EOL?

Please rate this experience: 1 Traumatic. 2 Painful. 3 Difficult. 4 Acceptable. 5 Comforting

4.09 (± 0.56)

N = 489

4.0 (± 0.71)

N = 474

Specific physician items

 14. Were the relatives able to say good-bye to the patient?

Please rate this experience: 1 Traumatic. 2 Painful. 3 Difficult. 4 Acceptable. 5 Comforting

4.3 (± 0.62)

N = 489

 15. Did you experience conflict with the patient and/or the relatives?

Please rate this experience: 1 Traumatic. 2 Painful. 3 Difficult. 4 Acceptable. 5 Comforting

3.86 (± 0.93)

N = 488

 Specific nurse items

 14. Were the relatives able to have physical contact (touch. hug) with the patient?

Please rate this experience: 1 Traumatic. 2 Painful. 3 Difficult. 4 Acceptable. 5 Comforting

4.08 (± 0.7)

N = 471

 15. Were you present at the patient’s bedside at the time of death?

Please rate this experience: 1 Traumatic. 2 Painful. 3 Difficult. 4 Acceptable. 5 Comforting

3.39 (± 1.13)

N = 459